tag:blogger.com,1999:blog-4126434532800269564.post1243374642911417565..comments2023-12-09T03:24:56.205-05:00Comments on Adventures in Lymeland: A Fighting Chancealyson1derlandhttp://www.blogger.com/profile/08293531856749728379noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-4126434532800269564.post-48893705118486495082013-01-12T18:37:55.192-05:002013-01-12T18:37:55.192-05:00Hope you are doing better. My daughter is having ...Hope you are doing better. My daughter is having non epileptic seizures from Lyme disease. Can you tell me who your doctor was? Thank you so much.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4126434532800269564.post-15157420103311288632013-01-12T18:26:46.054-05:002013-01-12T18:26:46.054-05:00My sister is experiencing seizures with lymes dise...My sister is experiencing seizures with lymes disease. What is the name and location of your neurologist that specializes in Lyme?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4126434532800269564.post-18652021468521855832012-09-08T15:13:48.635-04:002012-09-08T15:13:48.635-04:00Just a little note to tell you today that I am thi...Just a little note to tell you today that I am thinking of you and hope you are hanging in there. Much love to you. Ginnyhttps://www.blogger.com/profile/12826701514928054537noreply@blogger.comtag:blogger.com,1999:blog-4126434532800269564.post-52220891931076706012012-09-06T23:39:12.649-04:002012-09-06T23:39:12.649-04:00How you speak of your stay at the hospital resonat...How you speak of your stay at the hospital resonates with my own experiences. They always seems to bring up the same questions: <br /><br />"You had Lyme Disease right, it's gone now?"<br />"Chronic what?"<br />"What's your doctor's name?"<br /><br />It gets to be so irritating to constantly be painted into a corner and treated like you're a psych patient whose "illness" has been allowed to go unchecked for too long.<br /><br />If the doctors that treat us like lepers would just stick around longer than the few minutes they have allotted for patient #16528 they might actually learn something about us, enough to give them the real picture of how this disease and it's related infection can so adversely change your life.<br /><br />Healthy happy people do not just get up one day and decide to "feel" sick and if sympathy was a priority, your damn sure wouldn't want to pretend to have a tick-borne disease, because that's about as far from what your going to experience as you could possibly get.<br /><br />In return for our suffering and struggles we get rejection, speculation, suspicion and criticized- not exactly the experience an attention-seeker would be aiming for, but time and time again we are accused of this.<br /><br />It's a sad state of affairs but one that many are actively fighting against and blogs like this are helping to change.<br /><br />I definitely agree it is an exhilarating experience when you call a doctor's office and the first few words out off the receptionist's mouth during intake are "Have you been diagnosed with Chronic Lyme Disease?", as it just simply doesn't happen unless you go to a Lyme-Literate doctor. <br /><br />I wish you luck on your journey and hope healing finds it's way to all of us!<br /><br />- Kenneth<br /><br />KMHhttps://www.blogger.com/profile/10615119164953928619noreply@blogger.comtag:blogger.com,1999:blog-4126434532800269564.post-56034338066816012922012-09-05T11:31:03.724-04:002012-09-05T11:31:03.724-04:00Still praying and believing for your healing. Muc...Still praying and believing for your healing. Much love to you!!<br /><br />Aunt LoisAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4126434532800269564.post-74940568608504659102012-09-05T00:24:36.024-04:002012-09-05T00:24:36.024-04:00Thanks for the update, Alyson. I will be praying f...Thanks for the update, Alyson. I will be praying for you and the decision you have to make. Thinking of you often. <br /><br />GinnyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4126434532800269564.post-58080943922713438812012-09-04T23:30:42.317-04:002012-09-04T23:30:42.317-04:00Holding you in the light as you guys make these de...Holding you in the light as you guys make these decisions, Alyson. Love and peace to you and for you.RSMhttps://www.blogger.com/profile/04584826496301431707noreply@blogger.com