Monday, March 26, 2012

March On

I haven't been writing much because I've been feeling really well. Today I had an appointment with my Lyme doctor and I was so excited for this appointment because I couldn't wait to share my joy with her in letting her know how well I've been doing.

Currently, we have been treating my Lyme disease with Bicillin intramuscular injections three times a week. I am a few shots shy of six months. My new treatment plan is to cut the shots back to one a week, and on shot days and the following day, I will take an oral antibiotic--a cyst buster known as Flagyl.

When the Lyme spirochetes are attacked with antibiotics,one of the ways they will try to evade this attack is by turning into a cyst form. They either come out of this cyst form when they think the coast is clear, or they are forced out by cyst busting antibiotics. Cyst busting drugs are essential for Lyme disease treatment, but brutal, because they are notorious for causing very strong Herx reactions. Flagyl is definitely on the list of least favorite antibiotics among Lyme disease sufferers.

Some people may be wondering why I should continue with the shots if I'm doing so well. The reason for this is because after my shots, I have been experiencing a strong Herx reaction. I get incredibly exhausted and have very severe flu-like aches for a few hours. While it's unpleasant, this Herx reaction means that the shots are still working.

Starting a new treatment regimen is always daunting. I've gotten used to being back in the saddle again, literally and figuratively, and it's hard to think about trading that in for feeling lousy again for a while. Remember, with Lyme treatment, you have to get worse before you get better. If you don't, it means the Lyme bacteria is not dying off.

My doctor mentioned that cutting back my shots could cause me to relapse, in which case I am to go back to three shots a week (without the Flagyl). It's hard to change what is working so well, but I'm not all the way out of the woods yet, and so I bravely march on to the next part of my treatment!

Doing a three mile hike on St. Paddy's Day!


  1. I'll keep my fingers crossed that the new regimen works at it's best for you. Three mile hike! that's awesome ;)

  2. Hi,

    Is there an email where you can be reached? Would love to hear your tips on lyme, I was just diagnosed and this would be helpful for me.


  3. It is wonderful you have been feeling so well Alyson. Yahoo!!!! Hope it continues as you attack from a different approach and knock those bugs on their fannies!

  4. I am so super happy for you! I LOVE that you are doing so well. YAY you!
    You look great, too! Happy, content. Celebrating your success.

    Much love,

  5. I'm so happy you are feelig so well!! That's really great! I've been following you since October so this is so good to hear!