Sunday, August 21, 2011

Epstein Barr Virus and Lyme Disease

In 2001, I was taking a bath when I noticed that there was a tick under my right armpit. I was so preoccupied that this creepy thing was attached to me and sucking my blood that Lyme disease was not something that ever crossed my mind; also, I didn't even know that people got Lyme in my state (I now know that it's in all 50 states and there are a lot of people with it in my state). What did cross my mind went more like this--Get this disgusting, creepy thing off of me, NOW!"

The timeline of what happened next is a bit of a blur, but to this day I still shake my head in disbelief that no one--not me, not the doctors, not my family or friends--connected my sudden problems with that creepy little life-ruiner under my armpit. I developed a severe case of mono (when I came down with Lyme-like symptoms again in 2009, it also presented as a very severe case of mono).

All of the sudden, I was waking up in the middle of the night with panic attacks. My throat felt like I was swallowing glass. I couldn't go anywhere or do anything for months. I had to have 'round the clock help to take care of myself. As the months went on, I suddenly found myself facing agoraphobia, debilitating anxiety and panic attacks, severe depression, restless leg syndrome so bad I couldn't sleep, separation anxiety from my boyfriend who I had moved in with and who selflessly took care of me through this agony (I married this wonderful man in 2002!).

Until I got sick again with Lyme in 2009, this case of "mono" in 2001 was the most painful thing I ever went through--including my two natural childbirths in 2003 and 2007. This should have been a red flag to my doctor that it wasn't just a simple case of mono! Again in 2009, this second case of mono became the new most-painful-thing-I've-ever-endured-in-my-life. I told my doctor over and over--This. Is. Not. Mono! ("This shooting pain going up my legs is not mono! This blurry/foggy vision is not mono! This joint pain, these tremors, mental confusion--and on and on and on-- are not mono...")

A few days ago, I took my kids to a new dentist. I was absolutely dreading telling the dental hygenist that my kids had contracted Lyme disease and several co-infections in utero from me and had been on antibiotics a lot (this is important information for a dentist to know, because antibiotics can affect the teeth). Imagine my surprise when the hygenist informed me that the dentist had Lyme disease, too! When the dentist came in, we started talking and I had mentioned that my Lyme had initially presented as mono and she said hers did, too!

I remember my doctor asking me surprisedly in 2001, "Are you sure you weren't around anyone with mono?!" My boyfriend and I were baffled at the time at how he managed to escape catching my incredibly contagious case of mono--aka The Kissing Disease--after being in such close contact with me before we knew I was contagious. Could the epstein barr virus, the virus that causes mono, be a tick-borne illness? Apparently, I'm not the only one who has wondered this question! 

Maybe in the future, doctors will ask people if they've recently been bit by a tick if they test positive for mono. And perhaps that could help lead more people to getting diagnosed properly with Lyme disease instead of being labeled as simply mono, when in fact, that may only be the tip of the iceburg!

17 comments:

  1. I contracted EBV too from the tick. I'm not sure what symptom comes from what infection, but am worried that although there is treatment for the bacteria - albeit controversial - there is NO TREATMENT for any of the viruses (I have EBV, HHV6, West Nile, and CMV)!

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    Replies
    1. Am Lilliam Gliory Do anyone still doubt natural herbs? I’ve seen the great importance of natural supplements and the wonderful work Dr Osagie have done in people’s lives. I wonder why people still spend their money on surgery, injections and drugs each time they are sick. Natural herbs can cure all kinds of illness. My Herpes disease was totally reverse with natural herbs this year. Earlier this year I  Purchased HSV1&2 herbal remedy from Dr Osagie and he told me that his  HSV1&2 herbal remedy only takes 2 weeks to reverse HSV1&2 completely and i found a site were everyone was talking about Dr Osagie and has ability to cure Herpes, HIV, HPV, Fibroids, Diabetes, Cancer, ALS, COPD, Anthrax, genital wart, cold sore, Arthritis skin tag and all manners of diseases and virus. But i had no choice than to purchase, because i knew COLD SORES was killing me slowly. When I received the herbal remedy, I only used it for 2 weeks as he instructed, it was so shocking to see the outcome, all my cold sore disappeared and my HERPES SIMPLEX VIRUS was fully reversed, am so happy for the good work he did you all have to contact him and get cure from herpes he is a real and legit herbalist. Link him up on IG @Dr_Osagie12. There is no harm in trying his natural herbs contact him via email: drosagieherbalcentre627@gmail.com or WhatsApp +2348160530032.Here is the great herberlist website: https://drosagieherbalcentre627.weebly.com/ 
      you can also visit Dr Osagie facebook page https://www.facebook.com/dr_osagie12-100387318324649/

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  2. Thanks for your post, Alyson. I am continuing to learn...I can't say much on here as this is the world wide web...but this info helps me a great deal. I will research this idea further. Very interesting.

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  3. Wow, lots of people with EBV and lyme.

    I have no idea when I got Lymed, but in 2003 my fatigue (which I've had all my life) was so profound I was in yet another doctor's office begging for more test to be done. One week later my tests showed I had mono.

    I was working at a university at the time where a lot of students get mono. She said take three weeks off and all will be well. Three weeks later she said I was negative for mono and all better but I felt worse and had more problems.

    I wonder what the connection with lyme is?

    My brother had mono and had a very different experience. He had the worse fatigue ever but had more traditional mono symptoms than I and with two weeks of rest felt much better.

    I am wondering if the mono was a false postive for Lyme? I don't know if that is possible.

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  4. Started with swollen glands, stiff neck, super sore feet, sore joints, swollen ankles and feet, Migraines, fungus under big toe nail. Felt like I had the flu 24/7 could hardly get out of bed. I kept going back to my Dr. I definitely tested positive for Mono. A year later a moderate case of EBV. Another year later I'm positive for Lymes. We think the Lymes started all of this. Then in the heat of this all I went into Menopause, which I'm still dealing with that as well. One day at a time. Lots of antibiotics. Orally (amoxicillin) and I did IV antibiotics for one month (rocephen). It's going on 4 years now, still one day at a time. There were more symptoms, I just listed a few. Quite a few yeast infections my mouth and vagina. Walking phnmonia, nausea and diarrhea bad all the time, (on going) these symptoms and more. This is very hard to handle. Sleep is a problem. I feel anxiety too. I've been out of work for 9 months, after 28 years in banking. It's hard to be home all the time without the social scene. Planning to go back in June, I'm totally excited. Hope my health holds. Hope this helps someone else. I just kept going back to my Dr. I could tell there was something wrong with my body it kept telling me (Help Me) follow your instincts. Also my stamina disappered, working on getting ME back. Work in progress. Good Luck to all! :)

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    1. Good luck to you as well, and never give up!

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    2. Hi there its been years sine your 2013 post, just wondering if u felt better. Having extremely similiar circumstances this year with Lyme and mono. Have/had both. Crazy burning painful heavy legs, ascending up body over 2 weeks. Siezures, eye ear headaches headache, swollen nodes, yeast infection like crazy. Get better then flare up with burning shooting in legs and back, headaches, etc. Ur story sounds similiar. U said it put u i to menopause? Early? Hope ur doing well

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  5. Trying to get my son diagnosed from a "mystery illness". So far no leads except it started with Mono and now has EBV. Tired all the time, joint pain, swollen hands, feet, double vision, auras, pressure build up in the back of the eye, depression, migraines, back pain, often has infections. Does this sound like Lyme???

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    1. I left a comment for you below on the website.

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  6. I was finally diagnosed with Lyme Disease this past July. I went to three 'Lyme' doctors and even had a spinal tap. They all told me I did not have Lyme. I finally went to the best doctor around....Dr. Charles Crist in Columbia, MO. He looked at my Western Blot test and immediately told me I had "New England Lyme Disease". Symtoms included: fatigue; depression; blurry vision; dull headaches; short term memory loss; tinnitis (ringing in my right ear); poor concentration; occasional pain in joints; my ear would turn bright red occasionally; swollen liver; elevated liver enzyme - ALT; difficulty sleeping; tingling of fingers (like that "falling asleep" feeling when you lay on your arm) and other symptoms. It sure sounds like you need to find a LLMD....a Lyme literate Doctor. Well I went to 2 LLMD's and they still missed the diagnosis.......thank God I got to see Dr. Charles Crist MD; I believe he is the BEST and he has saved my life. I live in New Jersey and it was sure worth the drive out there.

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  7. I too have Lyme and got mono and I don't date.

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  8. I recently was bitten 3 months ago. I started with rsv symptoms and thought it was from mold exposure. I tried prednisone but no relief. I then slept a week but my speach was like i was autistic. I even had adult social services investigate me thinking i was not lucid. Yet i was aware of everything going on. Anyways ny skin started burning like hornets in a few spots from the inside. I ended up with skin ulcer diagnosed as contact dermatitus then a bullseye no mistaling it. The skin ulcers come back as scab but regrow in same exact spots. Then flu like symptoms...mild fever then spastic muscles seizure pain in every place but my eyes. My ear rang loud like a whistle and my fingers and toes are numb at times or painful at others. Lymph swelled up and confusion set in. Anxiety from drs being mean. After 3 months i test for reactive band 66 on a blot test. I was on antibiotics for 2 months at time of test. So i waited n took another test aftet8 days of no antibiotcs and my ebv is elevated so looks like i had a recent epstein bar virus. I dont feel sick at the moment but i hurt bad in my shoulder n neck on right side. I pop all the time yet i never had before. I hurt on tbe right side only and take muscle relaxer and anti inflammatory but dosent help. My right leg also and i only have skin ulcers on my right side.i currently am still off antibiotics on my 2 week and waiting for two more weeks so im off a month and have an igenex test next fo me waiting..do u think its possible the ebv is wrong n mb its lymes. I dont think ebv has bullseye rash and i feel like a ms patient even tho ny speach is clear now

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    1. Opportunistic or co-infection... EBV is always active when I have Lyme flare ups. So, EBV is not necessarily a misdiagnosis but perhaps not a complete diagnosis. Hope you've found some answers and are receiving care that leads to relief and healing.

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  9. I was DX with Lyme Disease back in 2013, and the EBV was active at the same time!! I am currently battling a very sore throat and ears and glands are killing me!!! I seem to do this every time I get really tired this time its after 1 Week at Disney !!!! Im trying to decide if this is whats happening to me my immune system is low and when i go for many days the EBV activated and I get really sick ???? I feel like I am rambling but trying to see what everyone else symptoms are!! Thanks

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  10. My name is hoover, my 18 years old daughter, Tricia was diagnosed of herpes 3 years ago. ever since then,we have been going from one hospital to the other. We tried all sorts of pills but all efforts to get rid of the virus was futile. The blisters kept on reappearing after some months. My daughter was making use of Acyclovir tablets 200mg. 2 tablets every 6hours and fusitin cream 15grams. and H5 POT. Permanganate with water to be applied 2x a day but all still show no result. So I was on the internet some months back, to sought for any other means of saving my only child. just then, i came across a comment on dr imoloa herbal treatment and decided to give it a try. i contacted the him and he prepared some herbs and sent it to me together with guidelines on how to use the herbs through DHL courier service. my daughter used it as directed dr imoloa and in less than 14days, my daughter regained her health.. You should contact Dr imoloa today directly on his email address for any kind of health challenge; lupus disease, mouth ulcer, mouth cancer, fever, hepatitis A.B.C., syphilis, diarrhea, HIV/AIDS, Huntington's Disease, back acne, Chronic renal failure, addison disease, Chronic Pain, Crohn's Disease, Cystic Fibrosis, Fibromyalgia, Inflammatory Bowel Disease, fungal nail disease, Lyme Disease, Celia disease, Lymphoma, Major Depression, Malignant Melanoma, Mania, Melorheostosis, Meniere's Disease, Mucopolysaccharidosis , Multiple Sclerosis, Muscular Dystrophy, Rheumatoid Arthritis, Alzheimer's Disease, parkison disease, vaginal cancer, epilepsy, Anxiety Disorders, Autoimmune Disease, Back Pain, Back Sprain, Bipolar Disorder, Brain Tumour, Malignant, Bruxism, Bulimia, Cervical Disk Disease, Cystic Fibrosis, Hypertension, Diabetes, asthma, Inflammatory autoimmune-mediated arthritis. chronic kidney disease, inflammatory joint disease, impotence, feta alcohol spectrum, Dysthymic Disorder, Eczema, Chronic Fatigue Syndrome, constipation, inflammatory bowel disease. and many more; contact him on email- drimolaherbalmademedicine@gmail.com./ also on whatssap-+2347081986098.

    ReplyDelete
  11. I have been suffering from a genital warts disease for five miserable years without solution.i used all sorts of medicine without cure,one day i was on the internet i came across how a certain woman was healed from genital warts through the help of Robinson Buckler,i copied his email address, i wrote to him and explained everything about my health to him, and he promised to heal me,he prepared the medicine within a period of three days and sent the medicine to me through UPS company,i received the medicine within a couple of days,i started the treatment according to Robinson Buckler prescriptions he sent to me,i used the medicine for a couple of 14 days,so before the last day of the treatment i was already feeling healed,i went to hospital to conduct a test and i was confirmed herpes freed,i decided to go to another hospital for the same test, and i was also confirmed herpes freed,my own little ways of showing appreciation to Robinson Buckler is to let the whole world known, their is a powerful herbal DR who has a cure to herpes and so many other sickness and diseases, This is a requested photo and the request of the agent for the treatment of the drug. I did it, it’s a shipment of herbal medicines for me to DENMARK. After 14 days of using his medications, I went to the hospital again and I was also tested negative, Robinson.buckler ((@ yahoo)). com

    ReplyDelete
  12. Am Lilliam Gliory Do anyone still doubt natural herbs? I’ve seen the great importance of natural supplements and the wonderful work Dr Osagie have done in people’s lives. I wonder why people still spend their money on surgery, injections and drugs each time they are sick. Natural herbs can cure all kinds of illness. My Herpes disease was totally reverse with natural herbs this year. Earlier this year I  Purchased HSV1&2 herbal remedy from Dr Osagie and he told me that his  HSV1&2 herbal remedy only takes 2 weeks to reverse HSV1&2 completely and i found a site were everyone was talking about Dr Osagie and has ability to cure Herpes, HIV, HPV, Fibroids, Diabetes, Cancer, ALS, COPD, Anthrax, genital wart, cold sore, Arthritis skin tag and all manners of diseases and virus. But i had no choice than to purchase, because i knew COLD SORES was killing me slowly. When I received the herbal remedy, I only used it for 2 weeks as he instructed, it was so shocking to see the outcome, all my cold sore disappeared and my HERPES SIMPLEX VIRUS was fully reversed, am so happy for the good work he did you all have to contact him and get cure from herpes he is a real and legit herbalist. Link him up on IG @Dr_Osagie12. There is no harm in trying his natural herbs contact him via email: drosagieherbalcentre627@gmail.com or WhatsApp +2348160530032.Here is the great herberlist website: https://drosagieherbalcentre627.weebly.com/ 
    you can also visit Dr Osagie facebook page https://www.facebook.com/dr_osagie12-100387318324649/

    ReplyDelete